ilo Browne is a very brave little boy who suffers from delayed
physical and mental development and has so far baffled medical experts who are
unable to give a diagnosis of his condition. He was born and lives with his
family in Howdon, Newcastle upon Tyne, and is affectionately known as Our Milo.
condition is as yet unknown the symptoms
are not. Milo has no head control, suffers from uncoordinated movements, and is
unable to hold his body weight. His parents have been told that Milo will never
have the ability to sit unaided, crawl, walk, and may never even talk. Our Milo has
had a variety of tests for known
conditions, but so far every test has
come back negative.
Milo does have the
ability to learn and develop through play. Our aim is to
funds to pay for a fully adapted sensory room for Milo to learn and
develop. Milo's parents Stephen Browne and Laura Davidson are now looking to
create a bespoke sensory room in their home.
Milo's parents (Stephen and
Laura) want to give him the very best quality of life they possibly can,
however the reality is that to do so will cost money, far more than they could
possibly afford. A basic sensory room will set them back around £15,000,
this would be a massive improvement to Our Milo's life as it would allow him the
chance to develop and learn.
Raising money is not as
simple as it first sounds, there are many legal issues that have to be
undertaken, and as Milo's condition is as yet unknown there are few organisations
they can turn to for help. Becoming a Charity is a costly and time consuming
process, and it just would not be feasible for Our Milo to become one.
told Stephen and Laura that because Milo hasn't made any significant
improvements with his head control, and as he is now getting bigger, it's only
going to get harder for him to actually achieve any significant head control.
Our Milo's life has been tough
enough so far, and his parents were devastated to hear that it would become
even tougher, especially so when the best doctors are unable to diagnose the
exact condition he suffers from. Eventually his rare condition may actually be
dubbed Milo Disorder.
Milo's main way of
learning is through play, and sensory play is vitally important to his life, a
sensory room will give Milo stimulation and help aid his development, it really
will change his life.
The one thing Milo has in
abundance is love. He is surrounded by devoted parents, a fantastic Brother and
Sister, a loving family and caring friends who all want the very best for Our Milo,
and nothing will ever change that. What they need is money, as this will allow
his family to purchase proper equipment to provide the stimulation he so
Although Our Milo is less than two
years old he has undergone many tests and operations, to say he has experienced
a hard life would be a massive understatement. Despite all of his problems Our Milo
remains a very happy and smiley little boy.
Please take a look at Milo's
CONDITION page to see just how hard it
has been. This is one little boy that deserves your support and help.
Want to read more about Milo? Why not check out Our Milo on Twitter or read his page on Facebook?